About me

Hi, I’m Naomi, I’m 31 and I live in the UK where I’ve always lived. I have several chronic illnesses but Severe M.E., chronic headaches and migraines and Ehlers-Danlos Syndrome affect me the most. As a result I use mobility aids, crutches or a wheelchair to help me and I have a care team to support and enable me to live my life as independently and as fully as possible.

I now live in my own little home, a little bungalow that is just perfect for me and it’s wonderful to now have a place of my own. Living with multiple illnesses/disabilities can be hard but I have some lovely PAs and carers who make it possible, some days are obviously inevitably better or harder than others. 

I love being creative and I’ll give most crafts a try from decoupage, colouring, printing, crochet, iris folding to everything else crafty in between! I also hand make cards which I sell through my Cards for M.E. project and through that I’ve raised around £200 so far for various M.E. charities including Action for M.E., the M.E. Association and Smile for M.E.

As well as crafting I love books. One amazing thing is that I’ve regained the ability to physically read books again which feels pretty special. I love listening to audiobooks too which is still reading too, just in a different way. I like lots of genres young adult, memoir/autobiographies, true crime, psychological thriller, feminist nonfiction, science/medical nonfiction, disability fiction/nonfiction and more, as well as poetry too.

Another hobby of my is pen palling. As great as a WhatsApp or funny animal video from a friend is nothing beats a letter in the post! I love how unique letter writing is and being so isolated because of my health and not having friends in person letter writing I find gives me that connection to the outside world - to read about other people’s lives and what they’ve been up to in their life. I have a big imagination so I think that helps. I love making each letter I send unique and I always love the idea of making postal workers smile with my pretty envelopes. 

One of my favourite things to do and it’s my happy place is when I go for rides on my Batec. It’s probably the best pieces of equipment I’ve ever bought. It’s and electric add-on for my wheelchair, it just clips onto the front of my chair and then I zoom off!

Other things about me are:

  • I’m a Quaker
  • Lavender, dusky pink and turquoise are my favourite colours 
  • I love glitter (which I think should also be a colour)
  • Rainbows any time!
  • I have far too many rolls of washi tape
  • I also daren’t count how many bottles of nail polish I own!
  • My cute animals are sloths and koalas - I’d love to cuddle them both one day
  • I’m a Storyteller for the disability charity Scope
  • I love Grey’s Anatomy 
  • I’m an avid pen pal writer

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